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diabetes forum






    • CommentAuthorfoggy8
    • CommentTimeMar 26th 2008
     

    I was just wondering if anyone feels excluded from the healthcare decisions that are made by doctors and other specialists.
    I have heard that it is common for some doctors to underestimate the value of the patient awareness in diabetes, and the level of healthcare provided suffers as a result.
    Have there been any situations where you wished you better understood the reasons why particular healthcare decisions were being made?

    • CommentAuthorDray
    • CommentTimeMar 26th 2008
     

    In my case, no. After first being offered diabetes care by my local hospital - I was discovered as a diabetic after a stroke.
    I elected to be cared for for the diabetes by my GP/practice nurses and they're great, to the extent that as long as I
    go for diabetic appointments when they ask for me, no problems. If for some reason I can't, their very accommodating.

    As for understanding patient awareness? Hmm, that's interesting. No problems here. But I'm net-aware. And we have
    a local library. (hey! there is a life outside google/msn/ask/yahoo) Way I see it is that if you have to take an active part
    in your healthcare, you have to quote a reference.

    Have I "Have there been any situations where you wished you better understood the reasons why particular healthcare decisions were being made?"

    No. But I do understand that the health care professionals have a limited - ten mins. or less - to explain anything.

    I suspect that online people are much more forward in asking questions about things they don't understand. I'd go as far as to say that when you have to make a query online, you are dealing with people who are care-aware anyway. If you want a more representative view, I suspect you will have to
    to a more 'gum-shoe approach' and visit surgeries with a clipboard :)

    • CommentAuthorCaroline W
    • CommentTimeMar 27th 2008
     

    I would like to be more involved, or at least have a chat with my GP about my concerns. My GP has quite a large book as if I get a five minute slot when I need it or want it I'm lucky.

    I always have a list of things I want to ask, but if I get an answer I'm lucky. Fortunately for me, the firm I work for also organises a variety of health awareness events where I can get tests and things done, so that I can presnet the results to my GP for further investigation if necessary.

    • CommentAuthorfoggy8
    • CommentTimeMar 27th 2008
     

    Can anyone give examples of when they have questioned a decision made by their GP? or felt they should have at least asked why?

    • CommentAuthorCaroline W
    • CommentTimeMar 27th 2008
     

    I saw my GP, who said nothing about a change of tablets, the receptionest called a few days later to say I needed to pick up a prescription. As I wasn't expecting it and it was new pills I asked why of the doctor and why he hadn't at least told me at the appointment. I still haven't had a completely satisfactory answer...

    • CommentAuthorCaroline W
    • CommentTimeApr 15th 2008
     

    Our doctor has recently changed his surgery times. We only found out when we went down for repeat prescriptions. Out side appointments for necessary regular checks and a review of our medication we try not to go down unless we are ill. Everyone we know who has the same doctor has named him Secret Squirrell, information of any kind is not very forthcomming...

    • CommentAuthorihatesnow
    • CommentTimeJun 24th 2008
     

    check out this research group http://boinc.bakerlab.org/rosetta/

    • CommentAuthorDray
    • CommentTimeJun 25th 2008 edited
     

    It's a worthy cause - tho' I don't use that one.

    I kinda hoped Snowy (I love snow myself) would follow up with a more detailed explanation about how this works, I don't know Snowy but......

    Imagine, if you will, that you had absolutely massive amounts of data that needed working through.

    Guess it's not immediately obvious that developing modern drugs, to combat probs - whether it's diabetes, malaria ect, ect.
    not just developing the medicines, but analysing the how they interact with the human body down to a molecular level.

    It means massive amounts of computing power - money which would be better spent examining the data and acting on the results.
    Cheaper research means cheaper medicines. Unfortunately, the computers needed to analyse the data cost millions, and their usage
    has to be shared between research projects, which causes delays, and is, again, expensive.

    The humble home PC (and playstation 3 and some graphics cards) is now common around the world. As are internet connections.

    Millions, in fact.

    Many are left unused and on for long periods, and even when in use, use little of their potential computing power while in use.

    So a few years ago Seti@home (Search for Extra-Terrestrial Intelligence) had the brilliant idea that if they sent a little data to
    millions of people who were willing to give up the unused power of their computers (this was even before PC' :) )
    for as often as they want, lots of little bits of data analysed by thousands, or even millions of computer owners, add up, in effect,
    to thousands of computer hours, or a planet wide super computer.

    After a few years, as PC's became more common, this grew to include Rosetta - a search for specific disease cures, Folding@home,
    which looks for the ways proteins work in the search for cures/medication, and even things like searching for the ultimate
    Prime Number or even PI :) It's called 'crunching'

    As the years went by, they encouraged people to form into Teams. These are basically forums with people who all do their bit, share
    their interests - be it 'crunching', cars, humour, computer advice, hobbies - whatever. And there's friendly competition on who can
    do the most work ! God fun

    I do Folding@home on my PC's and on a PS3, and Seti@home. Team Phoenix Rising. I don't do Rosetta, but it's a worthwhile cause.....

    • CommentAuthorKimbo
    • CommentTimeJun 27th 2008
     

    Hi there,

    I know this probably has nothing to do with the above, I haven't read everything, but two months ago I had inflamation of my hip joints and my doc put me on anti-inflammatories for five days and by the evening of the fourth day I was so swollen that I could hardly bend with the terrible pressure on my head and my clothes were so tight it felt like I was going to pop. I couldn't even get my shoes on my body was so fat. When I got the medication (which helped the hips) there was no insert so I went onto the internet and checked out the side effects and was horrified to see that anti- inflammatories shouldn't be given to diabetics because they mess with the kidneys. I was put on water tablets and drank water until it came out my ears. It took about a week before I felt like a human again and my body was back to normal and my clothes fitted loosly. I was very disappointed in my doc, he was the one who diagnosed me with diabetes, I feel he should have been more careful. I honestly thought I was going to die, I've never been so sick before.

    • CommentAuthorDray
    • CommentTimeJun 29th 2008 edited
     

    That's interesting. I was on an anti-inflammatory, - a diuretic - for a while, and it worked well for me. My GP was quite strict about my usage,
    and insisted I couldn't take it for more than about three weeks, and it was low dosage - very low dosage. I kinda missed it when I stopped.

    I suspect it depends what you call an anti-inflammatory, and why it's being prescribed. If I understand correctly, a diuretic is prescribed
    for a collection of fluids in joints, or other limb swellings. So it's what my granny used to call a 'water tablet'. That matches in with stern warning to
    "watch that sodium and fluid intake ! " I had :bigsmile:

    Which is sorta opposite to your explanation - the clue being, that you had to get some kidney saving fluids into you. Logically.

    Is it possible that your anti-inflammatory's were antibiotics, or something like, ibuprofen based pain killers? Reason I mention Ibro's
    is because my asthmatic friends are warned off them because they need to avoid fluid collection in the lungs, which can be a side
    affect of their usage, I'm told. See where I'm going with that? I presume you prob needed painkillers with those hips, so....

    I suspect its something like that. Which might explain why you were put on 'water tablets' AND hit the fluids.

    I'm not a medic - but from personal experience - have a dig around for foods that keep fluids down and reduce inflammation.

    Regards, Dray.





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